Wednesday, February 19, 2014

Advice To My 22-year-old Self

Tali needed a shoebox to decorate for her Valentine's Day party.  I usually have a few stashed in a closet for school projects, but this time I didn't.  Luckily, I always have about 3 of them under my bed, holding onto my wishes, holding onto old pictures, hiding my secret stash of chocolate...so, I dumped the contents of the first Nike box I could find and gave it to Tali.

This is one of the things I found in that box. 



Me, at age 22, I just gotten my acceptance letter welcoming me into the nursing program at CVTC.  I had not yet become a mother to my younger three children.  I had not yet known the heartaches or happiness that would come with life, with some death, with some scares, and some successes. I did not know yet that the hurt I had known at 22 would pale compared to what life would bring later.  Noooo idea.

My life was so new yet.

If I could give my 22-year-old self some advice, what would it be?

I would tell her, Be strong, always, but don't harden your heart to love.  Having it broken will make you want to lock it up forever.  Don't.  You are stronger than anything that can hurt you.  Let it hurt.  Then, let it heal.

There will be very difficult times ahead.  Don't let them break you.  Don't. Let. Them.  They will make you wonderful if you let them. 

Do not tolerate treatment that is less than what you deserve.   Your feelings do not ever need to be sacrificed for anyone who truly loves you. 

Never be afraid to speak up for what's right.  Making waves is better than drowning.

Your heart will break many times.  Only you can pick up the pieces.  Only you can put them together the way they fit for you.  Do not trust such a job to anyone else. They will always fail, and you will always feel disappointed.  Heal yourself.  It's not up to anyone else.

Learn to forgive yourself.  It sounds so simple, but it really isn't.  Life is so much harder when we can't forgive ourselves for being human, for making mistakes.  You will be your worst critic, your harshest judge.  Be your best friend instead.

Don't spend so much time agonizing over every decision you make for your children.  Just keep on doing your best, every day.  All they'll remember is how much you loved them, how often you laughed, and what a good cook you were.  You can't go wrong with love.  Or great cooking.  :)

I Love You.

Your 37-year-old self, who wishes you'd had enough self esteem to kick the world's ass when you looked like this:
 Oh- and, don't take yourself so seriously, sweetie...


My Mom and I drinking Tequila.  Good times.  :)

Saturday, January 25, 2014

Sarcasm is my Superpower

*********************WARNING**********************
THIS IS NOT A HAPPY, FEEL-GOOD POST.
If that's why you come to read my blog, then skip this one.  This shit is fah real.  I am all out of nice today. Look back a few posts, there are some happy feel-good ones in there...this is not it.  And, there will be F-words.  No apologies.  Happy posts will resume soon.


Week 5 of IV antibiotic therapy.  The IV nurse calls me to say, "The last 2 nurses who have measured your PICC line have noted that it's moved out by 1-2cm.  We'd like you to come in for a chest x-ray to check placement, and if it's in the wrong place we may have to take it out and put a new one in.  Is that ok with you?"
...........................................................
(throwing my phone across the room and inventing new swear words, foaming at the mouth, air-stabbing my own ear.  My own ear.  I don't want to hear this.)

I laugh, a tired, little laugh.  My, "this is so far from funny, I'm laughing to stop from crying" laugh.  "No, actually, it's not ok.  The PICC comes out in five days.  It's been in for 37.  It's running fine.  It hasn't moved any more than it moved a week after placement, the doctor saw it then and said it was good, and, to be completely honest, I think I have had enough x-ray exposure at this point in my life, I feel like I'm glowing.  It's not just Paleo.  My Superhero Application has finally been approved."

She laughs, this nurse.  She has a sense of humor.  Six weeks of IV's and life-threatening infections and healing from major surgery is funny.  F*ck her.  She says, "I understand.  I'll talk to the doctor again and see if this x-ray is really necessary.  I'll call you back."  Don't call me back.  I'm not coming in til Monday, when you are removing this ficking PUCC line.  Or I'll do it myself.  I'm trained.  Mad skills up in this bitch. 
She didn't call me back. 

She understands.  She understands shit.  Not going back to the hospital for another x-ray.  Another complication.  Another M Night Shyamalan fucked up plot twist that I give zero shits about.  I am so tired.  I just want to be ok, I'm so ready to be done with this IV business and begin healing for real this time.
Back to my Superhero Application.  It has been approved, and my superhero name is

StaphFire!!!!!  Giver of NO FUCKS.



My wonderful and always encouraging mother says, "Lis, you're glowing.  You look so healthy!"  No, Mom.  It's the radiation and chemicals I'm having pumped into my system on the daily.  (Beauty Secret #101)  StaphFire's superpower is GLOWING with the power of the SUN.  And, the power of the zebra bathrobe.  Or, the power of Sarcasm.



Someone else says, "You look amazing, especially since I know you have kids.  What's your secret?"  Well, recently, I've been eating cookies, fruit and yogurt, because when I throw them back up an hour after I inject myself with all of these antibiotics, they still taste alright.  And, the probiotics are keeping my immune system from allowing every single winter virus into my body that the kids insist upon bringing home, which, at this point, could be very bad for me.  I survived Round 1.  Winter is long.  We're not thinking about that.  We're just enjoying delicious probiotic-filled yogurt, kombucha, and oranges.


A drunk man with a Chevy Silverado couldn't kill me.  A massive infection couldn't kill me.  Losing 3 units of blood when I gave birth to my 3rd son didn't kill me.  And raising these strong-willed, brilliant kids hasn't killed me.  I  must be stronger.  Or, the Last Highlander.  I am Irish, after all.  That's close.  There is no killing me.  NOT THIS DAY!

Someone else says, "Well after as many surgeries as you've had, I'm sure your recovery will be a breeze!  You're a pro!"  Yeah, that lady's dead now.  I plead insanity; hers.  She doesn't know wtf she's talking about.

"How is your house so clean?  You have all these kids AND you're recovering from surgery.  Do you have a housekeeper?"  Yeah, cuz I'm so rich, with "all these kids."  Like they're rats or a scourge.  "All these kids" are AMAZING.  "All these kids" are my HEARTBEAT.  "All these kids" are all the reasons I breathe.

  I clean when I'm angry or need to feel in control, which, my desire to feel in control is pretty much all the time...so my FUCKING HOUSE IS ALMOST ALWAYS CLEAN.  If you come over and I'm cleaning, just leave.  It's safer for all parties involved.  I clean until I am a detriment to myself, because now I'm in pain.  But my house is clean...it's not so bad, is it?  NO.  Get out of my clean house. Now I have to clean again.  Look what you have done.

"Everything happens for a reason.  There must be a reason you're going through this."  Yeah.  The reason is, I WAS HIT BY A DRUNK DRIVER AT LIKE 70MPH.  Human beings are not meant to be hit at those speeds, and live.  But I did.  So now I have shit wrong with me.  I'm coping.  I'm pretty amazing.  No amount of or lack of praying made this happen or could've prevented it.  Life. Happens.  We deal, or we don't.  THAT. IS. IT.  There doesn't always have to be a  reason.  Sometimes life is really hard, and sometimes it's really good.  READY TO APPRECIATE THE GOOD NOW.  Thank you, and goodnight.

Retiring to my electric zebra blanket tent.  I will reappear in March or April.  I haven't decided yet.  I'll let you know on Groundhog's Day.

The good news is, (yes, there's always good news, even when I'm trying to just air out some negativity) I've done some major research of these two "harmless" bugs that have threatened my life.  I can trace back many of my pain symptoms and autoimmune symptoms to the year I had my hip replaced, which could also be how long these bugs have made a home in my hip joint.   Lesson:  NO bugs are harmless to someone without some of her God-given parts like a spleen, and to someone with prosthetic hips, neck bones, and arm bones.  Gotcha.  Being thankful that I'm here to have this duly noted.  I'm sure at least some of you reading this are happy to know this, too.  ;)

Thank you all for loving me through this, and I do love you right back.  And I'm posting the ugly parts of me, because they are what make us all human and what comes out when I am stretched.  Sarcastic humor is what I resort to when I am cornered.  Sick humor.  It does a Lisa good.  I will return to my regularly sweetened self who pisses everyone off because I can always see the silver lining, in a few days.  In the meantime, gloat away, because the All-Positive Lisa had a rough day.

The PICC line comes out in 2 days.  TWO.  DAYS.  And then I shall dance.  :)  Stay tuned.  And stay classy.  I am loving the shit out of this yogurt right now.

Thursday, January 16, 2014

Seven Year Tears

It makes me happy and sad at the same time to report that, after seven years, my dear brother, the laughter comes much more often than the tears.  It's a good thing, because it means we're all moving along through life, and just a little sad, because it means this has become normal.  But, this is what we do, because it is the way of it.

It's not that we miss you less or don't think of you as often, but we've settled into this life routine.  We've gotten used to the fleeting feelings of pain when we realize another milestone or holiday has passed and we didn't see you in it, and we just swallow hard and move on with the day.  It just feels so wrong sometimes.  I know I say I have faith in the bigger picture, the Grand Scheme of things, and I'd like to think that I do.  But the selfish part of me just wishes so much I could have just one more day to spend with you.

No one knows me like my brother and sister.  No one in this world.  I may appear to some to wear my heart on my sleeve, but most people know very little about me, really.  You did.  You always knew my moods and my thoughts, and how to make me laugh when I was taking something too seriously, which was quite often.

I can't even write about you today.  My satire is at an all-time high,  and I just want to be a smartass.  I thought I should be all inspiring...but I'm just not feeling it tonight.  I'm remembering how silly you were instead.  How much you loved life, and how little you hid from it, and I admired that about you so much.

I just wish you were here to go have a beer with when I'm feeling the need to get out for a little bit.  To go somewhere shady and sit in the corner and make up stories about the characters that came in, and you'd wiggle your eyebrows at some gross old bag and say, "would ya?"  And I'd laugh hysterically.  Would I?!  Where you'd ask for a really strong drink, sip it as the bartender waited for you to pay and you'd sputter, "What, are ya mad at me?!"  And the bartender would never get it, but I'd be giggling.
Remember the time I was Cher for Halloween, and Carl didn't want to be Sonny because Sonny was a "little prick?"  heh.  And then some Idiot Child got mouthy at a bar and he caught my camera with his face and broke my favorite lipstick.  That was a fun night.  :) That might've been the last punch I've ever thrown.  I'm glad you were there! 
I remember how you'd think of the corniest pick-up lines to use, so sure no one would ever fall for it, and then you'd use them on random women and they'd work, and then you'd look at me like "WTF do I do now?! HELP!"  And I would never help you, I would only laugh.  Oh, I miss you.
I miss driving out to get you with my backseat full of boys in carseats because you ran out of gas on your way home from fishing, and years later, you'd drive me to my doctor's appointments after my car accident.  Thank you so much for that.  Thank you for being such a great brother.
I miss breakfast on occasional Sundays, and green eggs and ham, and green beer on Saint Patty's Day.  I think it's funny that you were always so proud of our heritage, from a very young age, and I could give a shit less until I started wondering which family members I must be like, because I'm six kinds of messed up compared to everyone living...so I joined Ancestry.com, and it turns out, I am the only one who's this brand of crazy.  So I'm original.  I'm ok with that.
We never got to go have that Scooter War in Wal-Mart that we talked about when we were both using canes.  I might have to go do that just to say I did, since I'm using a cane again sometimes.  If you're not there, I'm gonna be so pissed. 

I miss you yelling at the TV during Packer games, and it's the funniest thing but when PJ yells at video games or football, I get all misty-eyed because he sounds and acts almost exactly like you did when you were mad!  Sometimes I call his phone even though I know he gets irritated when I use his minutes, but he sounds just like you on the phone.

Sometimes I feel like someone should go, "would you just get over him already and get on with it?"  But I just don't know how.  I don't want to forget, and I know I won't.  I'm not sad and hopelessly mourning, and I haven't dedicated my life to resurrecting your memory; I just feel that your life was very important to us, it has affected so many of us, and you deserve at least a day or two a year when we remember you, when we celebrate your life and the children you brought into existence before you so swiftly left this world.  I know it's not easy for any of us, but I also know that you wouldn't want us to mourn you.  You wouldn't want us to celebrate your life either, you were always humble.  But, too bad, you're not here, so we can do what we want.  We will celebrate you.  :)

You taught me many things, but one important thing is this:  Stand up and face your pain.  It will always find you if you run, and it can come out in our lives in other ugly ways. Save the people who love you from suffering for your pain; deal with it as it comes.  I really do try.
Some days might be easier than others, but whether that pain is the hole in my heart where you are, or the scars from that damn old car wreck, or paying too much rent for a place I don't wanna live anymore or suffering someone's inadvertent boring and shallow conversation, I try to always face my pain.  So I will cry my Seven Year Tears, whenever they need to fall.  I will not wonder when I will stop missing you, because the answer will always be "never."  But I accept that this is the way life is meant to be. Acceptance is one key element to a happy life.   I will laugh and feel the rain on my face when it finally comes in the summertime and I'll remember to splash in the puddles with your kids every chance I get.  I will tell them everything I can about you for as long as they'll let me, and even after that I'll bore them with stories of myself.  But I'm not nearly as funny as you.

What would you have me say to your kids?  If there were one, all-encompassing, very crucial thing for me to say to them, what would it be?

And the song that comes into my head, of course, is Bob Marley, Three Little Birds.
I fucking love you.  I miss you so much, and I just love you. You WOULD say that.  Because above all, you would want your kids to do what makes them happy, and not to ever worry about the trivial things in the world, the material things in the world, don't worry about what others think of you as long as you are happy and living a good life.  I know you would want that for them, and I do too.  Those three little birds of yours.  They are amazing kids.  Thank you for blessing us with them.

Don't stop visiting us.  Don't stop talking to the kids in their dreams, or kissing them goodnight or helping us to keep your memories alive. Please visit Aidyn in a dream soon.  I think it would mean so much to him. We DO still need you in our lives.  It doesn't mean we don't have room in our lives for each new thing that comes to be; it doesn't meant we're trying to live in the past, it just means that there will always be a place for you, a place that no other soul could ever fill, a place of honor, in our hearts.  We love you always.  Thank you for being you.  Thank you for being my brother.

I'm playing this song for your kids today.

http://www.lyricsfreak.com/b/bob+marley/three+little+birds_20021728.html


Saturday, January 11, 2014

What does pain have to do with flowers..?

Today, I had a moment in the shower.  A beautiful, serene moment, where I felt NO PAIN.  None.  Anywhere.  It was so perfect.  People who know chronic pain, you know what I'm talking about.  The moment when you go, "OH MY GOD!!  There is no hurting right now!"  And you memorize everything in that moment, where you are, the sounds, the smells, the beautiful feeling, you take a snapshot of it, you tuck it away inside and you know that it's there when you're really hurting and needing relief. 
Your God moments.

I closed my eyes, letting the hot water hit me, washing my happy tears down the drain, and I breathed.  Soooo deeply, I breathed that painless, perfect moment into every pore, every fiber of my being, and I thought of a flower, an orchid, to be exact.  The kind of orchid you can see through, how the delicate petals show their flawless veins of pink through the waxy white, I breathed that pain-free feeling into every vein I have, and I felt fucking incredible.  (I had 2- 325mg plain aspirin on board at the time, fyi)

I took this picture.  It's my orchid.  Don't steal this pic, ya cyber-thieves.   :-P


Then I got out of the shower and stubbed my toe, and the tile floor was cold, and my hip started aching again and I could use a swim and a chiropractor, but I still felt pretty great.

 https://video.search.yahoo.com/play;_ylt=A2KLqIFSFdJSeXoAlwX7w8QF;_ylu=X3oDMTB2bHV1ZGs5BHNlYwNzcgRzbGsDdmlkBHZ0aWQDVjE1MARncG9zAzI-?p=Good+feeling%27s+gone+finding+nemo&vid=2c2503224e34e58ae03dbc98220fe358&l=00%3A50&turl=http%3A%2F%2Fts1.mm.bing.net%2Fth%3Fid%3DV.4664533268300656%26pid%3D15.1&rurl=http%3A%2F%2Fwww.youtube.com%2Fwatch%3Fv%3DvfIuoVwhlgU&tit=Finding+Nemo+Deep+Sea+Fish+Attack&c=1&sigr=11ankndtc&sigt=1110ka9e9&age=0&&tt=b

(I hope this link works, because it makes the whole post.  If it doesn't, just Google "Finding Nemo, Good Feeling's Gone Deep Sea Fish Attack."  Trust me.  It fits.)

I didn't go WAHHHHH, where did my happy go??  Where is my good feeling, my God moment, my peace??  I didn't ask this, because I know.  It never left.  It never leaves us.  We just forget what it feels like sometimes, when the pain is too great or lasts too long, or we are having a hard time seeing an end to the hurting.  But we don't need to worry about the end.  We just need to get from one moment to the next, from today to tomorrow, and sometimes, that is all.  We have right now.  Right now, is precious.  Right now is where we are living.  Sometimes, that's all that needs to matter.  Right now.

The flowers don't stop blooming because they are afraid to die when winter comes.  They open each day, reaching toward the sun.  The bask in its warmth, they don't fear the cold days that will inevitably come.  They stop blooming because they need to rest.  They need the snow cover, or they'll never bloom in the spring. They need to sleep, they need to recuperate, they need to withdraw.  Sometimes we need to do that, too.  Flowers never lose touch with the rhythms of the earth; people do.  We, with our great cerebrums and fancy degrees and opposable thumbs, we lose touch with our roots, and we suffer so much for it. 

We can't live in fear of pain, in fear of the dark places that lie in between the patches of proverbial sunlight in life.  We exist in all of these places.  Light or dark, they are all a part of each of us.  I love them all.  They make us, we make them.  They are all God moments.

When I say "people with chronic pain, I don't just mean physical pain.  Pain can be emotional, it can be fleeting, it can be in each day or parts of days, or in the weeks or months following trauma of any kind, or chronic or caused by disease or depression or any of many things.  But pain is not the constant. YOU are the constant.  YOU are not your pain.  I am not mine.  But I AM.  And so are you.  And if we are here, no matter how dark it might be some days,  or how unbearable that pain may be, THERE IS A REASON FOR YOUR LIFE.  Trust in that. 

So there.  :)  I love you.  Keep the sunshine.  Let go of the dark when you're done with it. 

Friday, January 10, 2014

One Month + One Day Post Surgery

OK, I'm going to gripe.  A little bit.  And then I'm going to talk about how great I'm doing.  Because that eliminates the gripeyness, and points out the positives and then I can move forward.  What am I doing in here?  I'M KICKING MY OWN ASS.  DUH!

I. am.  EXHAUSTED. 

It's like constant morning sickness, without the euphoria of a baby on the way.  The tired, foggy-headed, mouth watering icky sickness that wakes me up at night and keeps me tired all day.  I think the high doses of antibiotics are friggin killing me.  Figuratively.  Truthfully, they are helping me, I know that.  But, holy shit. Also, my hands and feet have started tingling, which I'm told can be a side affect of the meds.  Oh, and did I mention the anxiety?  I get a fun heart palpitation and a panicky feeling while the IV is running, every time.  It goes away after a few hours. Another side affect.

I'M ANEMIC, WHICH MAKES ME FEEL LIKE I CAN'T BREATHE.
 I'm a bit anemic too, which adds to the anxiety feeling.

I'M TIRED OF PUKING.

Within an hour of each daily dose, I am losing my lunch pretty regularly.  I am eating yogurt and kombucha and pickles and olives and saurkraut to keep probiotics in my system and taking my vitamins mostly in the form of raw food and upped my protein, iron and vitamin C and D and

I HATE FOOD RIGHT NOW. 

I have no appetite.  I don't want to eat.  I want to throw up.  All. The. Time.  But I do eat, as much as I can.  I've still managed to lose 8lbs this month.  (I don't miss it.)

I AM REALLY HURTING SOMETIMES.

At one month post-op, I decided I want to stop taking pain meds, and I've been weaning myself off of the two they prescribed me after surgery.  I'm now using the pain as nature intended.  As a gauge.  As an indicator.  When we hurt, that is our body's way of telling us something  is wrong.  We need to listen to that very important indicator.  When pain increases, my activity has to decrease.  If I feel no pain, I will keep going like a freight train.  I know this about myself.  So I have to have something to tell me when to slow down.  This will keep me from injuring myself.  Again.  (it only took me about 7 years to learn that. duh,  I know.)  So what am I doing when my pain increases if I'm not taking pain meds? I rest.  I meditate.  I distract myself by writing or painting or sewing or playing a game with the kids or reading, etc.  I use heat or ice on my back and hip.  I use Arnica Salve, which is AH-MAZING for pain, I wish I had tried it years ago!  Massage.  Music.  I eat a Tbsp of raw honey + 1tsp turmeric + 1tsp cinnamon up to 3 times a day, which has very powerful anti-inflammatory properties.  And it's helping!

I AM GETTING REALLY LONELY.

Yes, I have a large family, so the kids are wonderful at keeping me company.  But, I am not able to drive until the IV meds are done, and Lou works a lot, the kids are in school, and I'm home ALL the time.  Like, I don't leave the house for days sometimes.  (it was nice while it was below zero, but...)  I'm starting to watch funny pet videos to cheer myself up, because I'm getting cabin fever.

http://cheezburger.com/7994247168


I AM TIRED OF TAPING A ZIPLOC SANDWICH BAG TO MY ARM EVERY TIME I TAKE A SHOWER.

Uh, yeah.  I have to keep my PICC line and dressing from getting wet.  I found out if I cut the "zipper" off of a Ziploc bag and then cut the closed end off too, it fits perfectly over my PICC line and I tape it down, so it is waterproof when I shower.  It's annoying.  Then I'm paranoid the whole time I'm in the shower, totally freaked out that I'm going to get water in the PICC and have

OK now cool things about all of this.

I MADE A MEDICAL DEVICE OUT OF A ZIPLOC SANDWICH BAG!! 

Heh, heh...

I AM AN AMAZING HUMAN BEING.

One neat thing about post-operative healing is that there is a natural anesthetic in your body that helps to curb the pain.  I suspect I have A LOT of that natural anesthetic.  My entire incision area was completely numb, like dentist-induced Novacaine numb, until about a week ago.  Now, as the body heals from the inside out, I'm getting feeling back in that area.  (my butt hurts.)  It's not just the incision area that hurts, it's hurting down my left leg all the way to my foot, occasional shooting nerve pains as the tissue and nerves figure out what the hell just happened.  The human body is amaze-balls.  This is going to be ok.  And it's funny to randomly exclaim that my butt hurts.

I AM ALWAYS WEARING ONE OF MY FAVORITE COLORS NOW!

I am now always wearing my favorite shade of periwinkle.  The ceramic "ball" that they put into my hip is a very lovely shade of lavender or periwinkle.  :)  You can't see it in the photo, but I know it's in there, because I saw it at my last appointment with the surgeon. 
I also got to see the old hardware that they took out, and the surgeon showed me where it was damaged, and how I can avoid having that happen again by not "power-walking," avoiding certain yoga poses that extend my leg too far behind me (which I did anyway because they would cause discomfort) and just being aware of movements that hyper-extend my hip joint.  :-/  I still do not have a definitive answer about how/why this infection occurred, but I do know that both bacteria are harmless when found on the skin, but can be (obviously) very serious and/or life-threatening when they enter the bloodstream, especially of people with compromised immune systems and prosthetic devices.  (ahem, moi.)  They like to quietly settle into these prostheses and slowly do their damage.  This surgery was actually a blessing in disguise, because I was actually sick for a really long time, and no one could figure out why, or explain my symptoms.  Now we know.  So a little pop and click pain in my hip actually ended up maybe saving my life.

I'M OVER HALFWAY DONE WITH MY IV ANTIBIOTICS!

I have just under 3 weeks left of IV antibiotics.  Then I will have 6 months of oral antibiotics.  Then they want me to think about staying on antibiotics for life, as a prophylactic measure...which I'm not crazy about, but we'll see.  After 7 years on meds and doing all my doctoring with Western medicine practitioners, I feel a million times better using natural healing methods, and am finally off of all prescription meds.  That was a very long and scary battle.  I don't want to have to be on anything for life.  But, Western medicine does have its place, I am a living, breathing testament to that truth.  So I'm going to do some research and decide on my best option. 

I AM F*CKIN STRONG!

My pain is decreasing, and my strength is increasing, every day.  I am slowly getting my feet under me again!  Today I was out in the yard for a few minutes, talking to the kids, and walking on uneven, snowy surfaces is still not a great idea, without a cane.  Not at all.  But I am getting stronger every day!

I DON'T USE MY CANE AT HOME ANYMORE!

I don't use my cane at home anymore, only when I'm shopping or at an appointment, anywhere that requires a lot of walking.  Yay me!  I know I'm stubborn about it, but I really don't like using a cane again. 

I AM HUNGRY FOR GOOD FOOD, AND TIRED OF SHOUTING!

OK I'm going to go make some chicken stir fry and fried "rice" (quinoa), heavy on the veggies.  FOOD CAN HEAL US!!

I LOVE YOU ALL SO MUCH!!  THANKS FOR ROOTING FOR ME!!!  WE ARE ALL IN THIS TOGETHER!

I love you all, and thanks for always loving me.  xoxo

Tuesday, December 31, 2013

Healing Scars

Project:  Scars.

This surgery didn't go as perfect as my doctors and I had imagined.  What appeared to be a routine revision and scar tissue removal, turned into a bit of a clustercuss.  When removing the scar tissue, essentially, they "unleashed the bomb,"  setting off a mass septic infection that had no symptoms until 24 hours post-op, had never shown up in my bloodwork, did not appear to the surgeon even as he operated, but that showed up in the cultures from the tumor, scar tissue and hardware they removed from my hip.  This infection has required 3 different antibiotics, oxygen therapy, a 4-day hospital stay and a PICC line insertion, which has allowed me to give myself the necessary daily doses of 2 antibiotics for a 6-10-week period, to be sure that this infection doesn't settle into the new hardware they just put into my hip. Three weeks into this IV antibiotic therapy, I think it's going just fine.  I'm eating to heal my body, I'm staying on top of my physical therapy, and holding down the fort at home with help from a great partner and family, some wonderful nurses, and my amazing kids.

So, along with the expected pain of healing, I've had twice the number of doctor visits, daily IV doses of antibiotics that make me nauseous and exhausted, and I'm still Mommy, Nanny, Consultant, Writer, Illustrator, and all of the other things that I love to be so much.   And I'm managing.  Thanks to wonderful family and supportive friends, I'm managing just fine.

At first it was really scary, and hard not to be angry...but then I realized, I could document this, and maybe use it to speak to people about how drunk drivers don't just affect people during the times they drive drunk, or affect only their own lives when they get caught.  As a result of this drunk driver's actions, I have now had 9 surgeries.  I'll likely have a few more before it's all said and done, but hopefully not for a long time.  I really mourned my scars for awhile, my pain, the changes that have had to take place in my life and my work as I've adjusted to the way my brain and body work now.  A lot of it is invisible to most people who know me, but I know.  I feel it, I notice how I'm different, and sometimes that really makes me sad.  Sometimes, I'm amazed that I'm even alive at all, and I really do try and make the most of my life and all of the beautiful blessings in it.  I love my scars now.  They tell a story.  They tell my story.  They speak of my pain, and they speak of my healing.  Sometimes I wish I could send a letter to the man who is responsible for these scars.  And I wonder, would it make a difference?  It already does, to me.  This is all a part of me, of my life, and I embrace it.  But if you know of anyone who drives drunk, who's driven drunk, or who might have a problem with drugs or alcohol, maybe you can tell them my story, show them my scars, and maybe they'll see just a snapshot of how a drunk driver impacted my life.  I've never posted pictures of my scars before, I've been self-conscious of them for years now, but maybe showing them will make an impression on others and save someone from suffering what I have.

My new hip scar, December 2013, total hip revision and pseudotumor removal.

My daily IV meds.  Thankful for my dialysis and IV experience!!  Piece of cake!  This also makes me sit still for an hour a day.  :)

The scars on my face that, most of the time, only I can see now.  My eyelid was reconstructed, my nose was put back in the center of my face, and my lips and chin were peeled back like a banana until the doctor stitched them back up.  But, amazingly enough, my vital signs were stable, my heart is strong and just kept right on beating.  This allowed a wonderful plastic surgeon to take his time reconstructing my face and removing auto glass.  And I have even learned to love these scars.  They remind me that I am more than what people see on the outside.  

This is what happens after using a cane for 2 weeks as my hip heals. I also lift babies for a living.  And today, I planked for 90 seconds.  Nothing will keep me down for long!!!

The stretchmarks are thanks to my five beautiful children.  I have earned my stripes, people.  The scar that runs from my sternum down to my pubic bone is thanks to a drunk driver, and my need for an emergency splenectomy, which was lacerated and dumping my blood into my gut at a dangerous pace that day.  Four units of blood lost, and thank you to the donors who saved my life by replenishing my lost blood supply!  Without you, I wouldn't be here!  Donate blood, especially if you have a rare type, like me.  You never know whose life you will save!

 My left hand, healed up a long time ago, had stitches up the backside and down through the palm from auto window glass cutting it in half.  Good hand surgeon, salvaged almost all nerve function and rehab has brought back full use. 
My right hand, I had shattered bones suctioned out of my wrist and replaced with metal plates and screws.  It works just fine now.The x-ray looks like a pin cushion is in my wrist, lol.

I don't have any pictures of my neck scar or or an x-ray of the fused bones, or an x-ray of the messed up vertebrae and disks in my neck and back, but they let me know just about every day just where they were hurt.  I've learned to accept it, I don't fight it anymore.  I love my body and how it's  healed, and I am so thankful for being so strong, that I can care for my family, for myself, and for others around me that I love so much.  I don't ever take for granted how precious life is, or how fragile.

I forgive the man who caused me all this pain.  I don't wish him ill, I wish him peace.  I hope he's found healing and forgiveness of his own, and that he's turned his life into one that blesses others instead of causes continuing pain.  It is a daily prayer of mine.  I hope he's never driven drunk again, and I hope he's told people what happened to us that day, so that others can be warned of how devastating alcohol can be when you get behind the wheel.  I'm so glad I'm here to tell my story.  I am so lucky that I'm here to raise my kids, and that as a family, we can warn others against the dangers of driving under the influence. 
Especially as we go into New Year's Eve, which is probably a big night for people who drive when they really shouldn't.  Be safe, everyone, and make sure that the people you love are safe, too.

Just a few of my many reasons for living.  <3>









Tuesday, November 19, 2013

Surgery

Yep, surgery, again.  I'm a little nervous about it.  It's my 3rd surgery on my hip in 8 years.  I know that each time they have to do it, there's less of my God-given bone in there, and more Bionic Woman.  This means that, much like a car with its mechanical parts, I am going to need a bit more care and upkeep than I used to.  OK.  I can adapt to that.  If I must.  I do enjoy setting off the metal detectors at airports and watching everyone freak out when I show the TSA my awesome scar.  (my ass cheek)
This has been such a lesson in letting go of how I WANT things to be, and accepting how things ARE.  The quiet and loving silence of TRUTH.  It is now my friend.

I have made so much progress in the past year.  I wish I had had more time to post about it but I was too busy 'fixing' me.  I healed by leaps and bounds, would find my limits again and this time listen to them instead of rage against them, and just accept it.  I'm a slow learner.  I'm used to getting my way.  Meh.

I'm afraid to go through rehab again.  To feel I'm getting better, to feel hopeful, and then to hit that brick wall again, the one I've become too familiar with, but I've learned to lie back and love the sky I see over the top of that wall, rather than continue to bash my head against what I can't plow through. I've seen some amazing suns rise and set on this wall.  I am not depending upon an incredible outcome in order for me to be "ok."  I am just deciding to be ok.

I'm afraid of feeling that deep sadness that I felt after the disks in my back got so bad a few years ago.  I have made a slow and incomplete recovery from that, and I've learned to live with it...I've been stubborn about it, stopped all therapies, not wanting meds or injections or P.T. anymore, because it just gave me false hope of feeling better, which never happened, and the crash into that damn wall just got so tiresome after a while.  No more.  I am turning my back on that wall, I am taking a right, I am going around.  It looks like the Great Wall of China sometimes; others, it's just a crack in the sidewalk.  I can stand there, shouting at that wall like a crazy person and hating it for being in my way, or I can just walk beside it, grazing it with my fingertips to remember why it's there, enjoying the scenery along the way, because my life does not exist at the base.  I am my life.  I am not a roadblock. And, what is crazy, anyway?
 I may look at that wall sometimes, I may even paint beautiful pictures on it of me dancing in high heels, smiling and laughing without a trace of pain in my eyes.  That feels like going in reverse, though, and I can't change it, being wistful doesn't help me.  Being grateful does.  So, probably the picture that I'd paint would look more like a sunrise, or a sunset, or whatever picture brings me the most peace at that moment.  I am not my limitations.  I am not my scars, my medical history, or my tears.  I am me.  I am loved.  I am amazing.  I am so strong, even when I feel weakest.

So, it will be ok.  The surgery will free me of some pain in the long run.  I have been through tougher rehab than a simple hip revision.  I can do this.  I am thankful for a road to travel.  I will recover.  I will continue to do what I do, better all the time, and I will love the hell out of every single day and all of the amazing people I am blessed to have in my days.  I will go on.  :)

And, look at this pretty picture of a grapevine that I took while hiking!  Lou almost had to carry me back, because my leg hurt so bad.  Yup, time for some new scar tissue.  LOL

Tuesday, November 12, 2013

A Children's Book About Death




So, as most of you know, when my brother passed away in 2007, he left behind a wife, pregnant with his twins, and a 3-year-old son.  His son had many questions and fears concerning death after his dad's passing, and so, his grandmother (my amazing mother) wrote him this beautiful book.  And I have been honored to co-illustrate it with Deb Jarvar.  If any of my readers know children who are searching for answers concerning death, or any parents who are struggling to explain this type of loss to a child, please check it out.  It has helped my nephew, and my own children, in dealing with the passing of someone we all love so much. It is purposely exclusive of any particular religion so that everyone is free to express their own take on the subject, but it simply allows the readers to ask questions and initiate conversations about personal beliefs, and what thoughts bring comfort and healing during difficult times.

Thanks, Mom!!!  You are the BEST!!!  We hope that this story brings peace and healing to many many kids!!
Thank you, Brother, for the many life lessons we have embraced since your passing.  We'd rather have you here, but since this is our reality, we will love the lessons and spread the message of love that our journey has given us.  We couldn't have done this without you.  I love you always.

I hope the link below will work...if not, go to createspace.com or amazon.com and search for Aidyn Learns About Energy.

And here's a secret:  There are many more children's books coming!

Love and Light to All!!!

https://www.createspace.com/4508220?ref=1147694&utm_id=6026&fb_action_ids=10151734895675079&fb_action_types=og.likes&fb_source=aggregation&fb_aggregation_id=288381481237582




Monday, November 11, 2013

Veteran's Day- What's Happy About It??


 Uncle Ron, age 19 or 20 in Naval Uniform  



Today, I'm thinking about all of my uncles who served in the military.  I don't know all of them well enough to have had them share their stories with me, but I have been lucky enough to have one uncle share some of his story.  I'm thinking about my mother's eldest brother, who served in the Navy during the Vietnam war.  When I was a kid, I think I knew he had served, but I never really thought about it much, since I was, after all, just a kid, more concerned with the silly things that kids do, like laughing, playing, lollygagging...
When I was about 21, I asked my uncle, "What was it like in Vietnam?"  The rest of my family got very quiet.  Uncle Ron did not often talk about what happened there, what he saw or experienced, and I guess no one really asked him about it.  But that day, he decided to share with us a bit of what he had lived.  I think it was an hour or more, Uncle Ron told us about seeing new officers get killed within days of being "in country" because they wouldn't listen to the ones who had been there longer.  About how walking to the latrine was a life-or-death trek sometimes.  About how lying in your cot at night, listening to not-so-distant bombs drop and missing home feels like a cold iron hook in your guts.  About how the bonds with your brothers of war are like no other.  We all listened intently, just letting him talk, taking in all of the stories, and the pictures I formed in my mind, as vivid as they were, I knew they were nothing compared to the things my uncle had seen with his own eyes. At the same age of my two oldest sons, now 19 and 20, Uncle Ron had already been to war, had seen death, had experienced things I hope my sons never do.  Today, that hits home very hard.
I remember thinking then, and I often think it now, how spoiled we are as a country.  We know so little of war-ravaged streets, of our schools being bombed and our paths to and from work being daily war zones.  So many countries of this world see war as one of the only constants in life, war and death.  I won't write much about war, because I know nearly nothing about it.  About what strength must lie inside a person to be able to carry out the tasks necessary for survival and success in a war situation.  About how returning home doesn't mean the war has been left behind.  I think every soldier brings a piece of that war home with them in their hearts.  I have seen it in veterans' eyes, and I wish that I could erase or ease that pain for them.  But then, they carry it proudly, with a strength that is not known to civilians, because it has not been ingrained in us, it has not been lived by us, but it has been lived by someone we all know.  And for that, I hug my Uncle Ron a little tighter each time I see him, a little squeeze to say "Thank You."  It's all I can do.  I can't unsee the horrid sights, sounds and smells of a place I've never been.  I can't imagine what it's like to carry that badge.
Something else I never knew, but I found out on my own, was that my Uncle Ron had earned some medals for his Naval service.  I found one while cleaning out a cabinet in my grandparents' house, a star with green ribbon, in a blue velvet box.  He didn't talk about these medals, he never told me or anyone else how he got them, and I still don't know.  I just know that I love my Uncle Ron, and I am so very thankful for him, his service, and the service of all military personnel.  I am thankful for the sights, sounds, and experiences they endure to protect our freedom.  Thankful for the pain they carry, sometimes for decades, for a lifetime, after serving our country.  And all I can do is say thank you?  The words seem so paltry, so pale and feeble when used to honor such sacrifice.  They are only words.  But these are my words, and my words are the only way I have right now to show these amazing people, people like my uncle, my gratitude.

So, THANK YOU, Uncle Ron, and all of your brothers and sisters who serve, have served, and will serve our beautiful country.  And if nothing else, I feel it is our duty as civilians to do everything we can, every day, to keep this country beautiful, to work together to right the wrongs within our own borders, and to make our world deserving of the freedoms we enjoy because of these amazing soldiers.  And I will do just that.  I will continue to teach my kids to do just that, and I will tell myself that it has to be enough.  But I know it is never enough.  I know it's idealistic, and I fear that within my lifetime there will be more division and less unity in our country, but I will never give up hope, and I will never stop doing my part, because people like my uncle never gave up, never stopped protecting us.  For that, I am forever grateful.  I love you!



Uncle Ron, 2013, with his decorated Naval Uniform.

Wednesday, November 06, 2013

Anniversaries and Forgiveness



Eight years since I woke up in Heaven.  Eight years, during which, I've learned about forgiveness.  Forgiving the man who altered my life course so dramatically, who caused me immeasurable pain, the stranger who drunkenly ran a stop sign, eight years ago.

I have witnessed deep physical pain, deep spiritual growth, the deepest depression, and the deepest love and gratitude.  I have also experienced the most intense rage.  All because of the experiences I've had since this crash.   I am grateful for each experience, for the bad along with the good, for the realizations and the epiphanies and the tears, because they have all made me who I am.

I know, and I knew the day of the crash, that man had no intention of hurting me that day.  He was a victim of his illness, his habitual drinking, as is noted by his repeated OWIs.  I just happened to be on my way to work, crossing that intersection at the very moment he ran that stop sign, and broadsided my van.  I think of him occasionally now, send him prayers, and hope that he has found sobriety and peace.

I don't think I actually forgave him until a year or two ago.  I was so terrified to admit how angry I was at him, how enraged I was at this person, someone I had never met and yet he had managed to nearly kill me, altering everything in my life ever since.  Immediately after the crash, when my family told me it had been a drunk driver who had caused the accident, I just cried.  I told myself I forgave him.  I was too afraid to face that rage.  I knew I needed to heal, and holding onto that anger would not help me in my recovery.  That anger was like a poison, it seeped into my bones, it burned inside every time I ached or couldn't do something because of a physical roadblock or pain.  I let it go.  I forgave him.  He truly didn't intend to hurt me.

After several years of pain, depression, panic attacks, etc, I finally just got QUIET.  I learned to listen to how I was feeling and why, without guilt, without pain, without fear; to just listen, ask why, and also, how is this emotion going to serve me?  If it didn't help me heal, I learned to let it go.  Feelings of worthlessness started to melt away, the deepest depression started to lift from my life, and I realized that I needed to move on.  It's time to stop stuffing down the feelings and start coping with them.  Ignoring them will only make them bigger, more debilitating.  The beautiful thing about forgiveness is that you can't forgive someone else without also forgiving yourself.  Forgiveness is what I needed to truly learn to manage my pain.  The pain has not gone away, my loving acceptance of it has helped me to cope with it better.  My ability to see the gifts in spite of the pain, or maybe because of the pain.

Sometimes I have felt like I just needed to get over all of this; sometimes I have to remind myself that it's hard  to get over something that is still a part of your every day.  A limp, a scar, an ache, a flashback or a trigger...there is not a day without some or all of them.  But I own them now, instead of feeling like their victim.  I stopped being afraid of the judgments of others, and I stopped harshly judging myself.

Thank you everyone, for loving me through this, for knowing the depth of what I've gone through and not losing patience or faith in me.  I love you all, and am so very thankful for the people who have saved my life.
I'm healing.  I'm halfway there, I swear!


If any of you reading this would like to share your stories with me, please leave your comments here for me.  I want people to know that we all struggle here, we all have pain and difficulty, and if we can reach out to one another for encouragement, let's do that.  We're all in this together.  Namaste!! 

Saturday, November 02, 2013

I've Been Blessed With These Lives, I'll Do My Best With These Lives

Today, I'm thinking about how grateful I am that I get to stay home and raise my children.  Yes, I would make more money if I worked outside the home 40 hours a week.  No, I would not be able to get the medical clearance, I would not do well or feel well, or be happy, nor would my kids be as well-adjusted and centered as they are.  No, they're not perfect.  But they are great kids.  They are REAL, human, fun-loving kids. Sometimes I question my ability to guide them through a situation or difficulty, but we always make it.  I haven't run out of resources yet.

The reason I think about this a lot is because, for the majority of my two oldest boys' lives, I worked full-time.  I still read them bedtime stories after a home-cooked meal at the dinner table with the kids and helped them with homework.  But I always felt so hurried, on a timeline, always behind.  I regret not knowing how to relax into each moment with them, I hadn't yet shed my caustic and constant worrying mind.
Things I do miss about working outside the home.  I miss an orderly environment, designated clean and dirty areas, a set break time, going to the bathroom without a detailed conversation through the door, and the assurance of a shower before everyone else uses all the hot water.  I don't miss bosses, deadlines, patients dying or suffering beyond my control as chronic illness often demands, being confined to the scope of a practice I no longer put full faith in, or wearing shoes.  Or, getting out of my pajamas before I'm damn good and ready.

A few years ago, I finally threw in the towel.  It was not my choice.  I had been told by doctors that it was my "best option at this time."  I had much healing to do, and was not allowing my body, mind and spirit to DO that healing.  I resented that I couldn't just GET better.  I hated my very bones for not just DOING what I wanted them to do.  I still have days when I wish I could be saving lives.  But, I am.  I am saving my kids' lives, and the other kids that I'm blessed to have in my life, saving them from growing up without the self-awareness and other life skills that are such an important part of personal success.  I see the truth in it now.  I also see the great gift.  The gift of healing for not only myself, but for my kids, too.  This is so important.

I never would have allowed myself "permission" to stay home and raise my kids.  I lived by my work, I had to make money to feed the family, that's always how life was and I did not expect it to be different until I was well beyond retirement age, and I was perfectly ok with that.  Never questioned it.  It was just reality.  I probably used to make jabs at stay-at-home moms, mostly out of jealousy and guilt that I wasn't able to stay home with my kids, too.  Now I admire any parent who is able and willing to take on the endless task of running a household, full-time.  Work used to feel like a vacation sometimes.  Being home full-time is great fun, very rewarding, and also, very difficult.

 I've always thought that, since I am the mother of five children, that I've always taken my job/responsibility very seriously.  "If I have been blessed with these lives, I will do my best by these lives."  Not, "I will do my best with 'my' kids."  They are not mine.  They are not possessions.  I live by that.   I will not be The Old Woman Who Lived In A Shoe.  I DO know what to do with these kids.  I WILL love them endlessly, I HAVE and will continue to teach them to be compassionate and be kind and generous, and responsible, and ABLE, to know that they deserve excellent treatment and opportunities, and to be thoughtful and happy and well-read and to QUESTION. Everything.
 "Because I said so" is not in my vocabulary.  Do not be sheep.  I may be your shepherd, (for now) but you are not sheep.  "Trust your instincts.  Trust that feeling in your belly, what does it tell you?"  "Look at her face when you say that to her, what do you think she is feeling?"  They are more self-aware than most adults I know.  Many endless conversations about decisions and consequences are had in this house, not only concerning discipline, but environmental consequences, social consequences, emotional consequences, etc.  I am the mother of many critical thinkers.  This process starts young.  I remember looking into each of my babies' eyes, and seeing such wisdom I thought to myself, "They are already so brilliant.  Oh, dear lord, what have I gotten myself into?"  The most intense love of a lifetime, that's what.  The potential of each life in this world is staggering.  I don't always know best.  But I know I am deeply blessed.  My kids teach me as much, if not more, than I teach them.  And I will do my best to do right by them, always.

I don't post in detail about my kids very often, they are so precious to me that I feel this fierce sense of protection over them, that if I describe them or my relationship with them and how we live, I'm exposing them to the judgment of others and I have no tolerance for judgment.  I also have no desire to assume I have the right to write about them simply because I am their mother.  They deserve privacy, and I respect that. 
But, goddammit are they amazing.  And I am thankful that, in spite of the hurt and heartache of not being a successful nurse or director of nursing somewhere important by now, I am very grateful for the opportunity to BE here.  To listen to them.  To play with, to work with, to make a difference in kids' lives.  That is the why.  :)

The longer I am home, the more I start to let go of the external focus that drives so many of us, and also leaves us so emotionally starving and empty. It starts at home!!  What does?  EVERYTHING.

Saturday, October 26, 2013

Pink Hair is a Life Lesson

A few weeks ago, my 11-year-old daughter begged me for an unconventional haircut.  Shaved on both sides and the back, with a half- angled bob cascading down one side of her cute face...she had been asking me for this haircut for a year, and I kept putting it off, it made me anxious, reminding her that when she cut her hair short the last time, it bothered her that people thought she was a boy.  (she was 9.) Well, already at 11, there is no question that she is a girl.  And she was adamant.  "I don't care what anyone thinks, I LOVE this hairstyle and I really want it!"  Ok. 
I will step out of my own judgmental thought process here, my surprising conventional approach on this, and "let" her cut her hair any way she wants.  Who am I to tell this beautiful girl she can't have her hair short?  How does this affect me?  Me, who laughs when I go to the grocery store, sans makeup and bra, ponytail held back by a bandana, and realizing after a glimpse of my reflection in the grocery freezer door that I fit a few unflattering stereotypes myself.  Judge away, world, I think to myself.  I have kids to cook for.  I get my milk and go home.  I don't care what others think of me; but I am so protective over my kids, I want so much to protect them from the harsh judgments of others, their peers especially.  Kids can be so cruel.  But I want my kids to be better than that, to withhold their own judgment of others, to be kinder and stronger than what has become the new cool:  Bullying those who are "different."  I know, bullying has been around as long as civilization and probably before, but technology has brought it to a new high...but that's a whole different post. 

The look on her face as she examined her new haircut in the mirror erased any doubts I had about it.  She was GLOWING.  She was ecstatic.  She looks beautiful.  All of her friends love it.  One boy at school called her Miley Cyrus.  She responded, "I wear a lot more clothes than that chick, but thanks for the recognition."  A week after we cut her hair, she told me she wanted to dye it pink for the month of October, for breast cancer awareness.  So we did. 
I am thankful for this spirited daughter.  I am so grateful for the lessons she and her 4 siblings teach me, all the time.  I love how she steps out of her comfort zone, unknowingly setting the example for her mother that it's ok for me to step out of my comfort zone, too.  Her little sister loves the chance to do anything unconventional, so this was a no-brainer for her.  I love the silly faces in this picture, with one eating sushi and the other making what we call the Brizzo Face. 
(P.S. I love my pink hair.)

Monday, October 21, 2013

Cold Weather Aches

I've been doing so good!  But. Today it was 39 degrees out.  I put on my snuggliest Pink sweats, my slipper boots with da fur, and I even broke out the zebra electric blanket.  *sigh* I don't know why I'm in Wisconsin.  As soon as it dips below 55, I'm in sweats and boots.  The Aches have set in.  I am determined to make sure they don't stay all winter; however, today, they have caught me off-guard. Well-played, Aches, well-played...

I am going to have to stock up on arnica salve, cinnamon and honey, turmeric, echinacea tea, ginseng tea, and lots of chai (oh snap! I just remembered I bought a fresh bag of loose chai tea the other day! yesss.)

Here is where I think we should live. Santa Cruz, CA


I did not take this picture, I found it here:  http://www.city-data.com/picfilesc/picc12658.php



And here is what I think we should do for the Aches.  I am not affiliated with these websites, I just know this kind of thing works for me and is helping me cope with chronic pain.  :)


http://www.youtube.com/watch?feature=player_embedded&v=0S9kiADZHz0
and
http://www.youtube.com/watch?feature=player_embedded&v=_HQLsfZh5js&list=UUSGAd7US0VwzJ4xIucuFJLA

Thursday, October 17, 2013

And Today: A Clue to What I've been UP to!!!

I have been trying to come with a way to explain what I'm trying to achieve here.  How I have tried to figure out what it means to have survived because of modern medicine, and yet to have been failed by modern medicine so completely in my healing process.  How there have been too many procedures, needles, stark white operating room lights and cold tile floors, and not enough eye contact, kind words, and TIME.  Not enough time spent putting the pieces of my being, back together.  See, what most people don't know is that a traumatic experience, whether it be a car wreck, loss of a loved one, war experiences, a lost love, abuse, on and on and on...what most people don't know is that those instances may only take a second, or an hour or a day...but they can take a lifetime to heal if the pieces aren't gathered, and if the gatherer doesn't have the right tools.

I felt as though there was a great explosion that day.  The day of my accident, the day my brother died, and a few other days...  Like a silent scream that never ended, like watching a bullet shatter a glass bottle in slow motion; you can see every shard, every tiny crystalline bit as it explodes outward in every direction in an instant, and all you can do is watch in awe.  This is how it feels.  Like every piece of myself, my heart, my family, my work, my schooling, my soul, my body, my IDENTITY...I watched them all splinter and fall in slow motion, as I scrambled in real-time to scoop them back up and put them all back together again as fast as I could, as they cut my hands and made me bleed all over again, but I never stopped trying.  And they just didn't ever fit the same, and they cut me from the inside, trying to fit and form to the way I am in this life now, and they don't, not always.  I still feel like I'm bleeding, as I go about my days and smile and do my work, my play, my chores, my loves...I am bleeding, but not bled out.  I am crying, but silently, and not every day.  But here I am.  And I will go on.  And when a person is able to identify that, to face it in all of its raw pain and heartbreak, healing can begin.  It can be years.  When we can let the pieces fall, and we can look at them with love, with patience for our pain, and compassion for a fragile, beautiful LIFE, and we can gently, painstakingly and lovingly pick up each piece of that life and let them come together again as they will...healing does begin.  Some people do this instantaneously; others, it takes longer.  It's not a contest.  There is no right or wrong, as long as there is healing.

It's hard to be patient with yourself when you've seen suffering much worse than your own, and you see people who just smile, day in and day out, acting as if things are fine, you think, "what do I have to complain about?  Have you seen how bad _______'s got it??"  ...but I know now, even those who appear so strong, so stoic and brave, even they cry into their pillows at night.  Even those who would never dream of shedding a tear by daylight, I know the turmoil within you, and I send you love.  This insidious sadness, the pain that eats away at your inner peace like a starving dog...all we have to do is throw that dog a fucking bone.  Throw it a fucking bone.  It's starving.  We're ALL starving, for Love.  The thing is, we keep looking to others to love us, to make it right, to smooth the rough edges and keep our "happiness bubble" intact.  But it's never enough, we are still starving, because we are the only ones who can give that dog a bone.
That "bone" is many things.  Forgiveness, kindness, compassion, grace, humor...we are forever fighting to pull ourselves out of the pit of despair, climbing desperately for the ledge and falling again.  What if all we really need to do is FILL that pit?  What if all we need is to look inward with love, instead of the constant vigil of outward bravery and strength?  Why must we always convince ourselves and others that we have it all together, each hair and nail and brow perfectly made-up, tackling life in designer jeans and Ugg boots with our picture perfect family in frames all around?  Anyone outside looking in could see how "together" we have it.  Look INSIDE.  Look at that void.  Fill in that void with love, with kind self-talk.  Not ego, not vanity, with self-LOVE.  You know, the conversations we have in our heads, the words that we tell ourselves are true...make them kind.  It sounds so simple and stupid...but what you are thinking really can be powerful enough to kill you.  Be Love.  It sounds so simple...and if you let it be just that, just Love, well, it truly is.  And then we are able to be so much more loving and compassionate to those around us.

So, off of the soap box for a minute...I am writing this because I feel so strongly that I did not receive the care I so desperately needed, the kind of care that is left by the wayside in our modern world.  We look at illness and injury and how can we fix it?  What pill or treatment will work?  Write a prescription and move onto the next puzzle.  But that's the problem.  The Western world has lost interest in the entire puzzle, and is focusing on just one piece; sickness.  If we can make the symptoms disappear, we have success.  Untruth.  A human being is a million more things than mere illness.  I remember going to physical therapy for months after my car accident, and I had massage therapy.  I would lay on the table and tears would just stream down my face within seconds of the practitioner's touch.  I'd apologize over and over again, while she'd tell me, "It's perfectly normal to have an emotional release during massage therapy, it's your muscles releasing memory of the trauma.  It's ok.  You're always ok."  And I WAS always ok when I was there.  I was in a safe place.  I could cry, I could hurt, I could be weak, and I knew I was held up by strong and capable hands.  I didn't feel that way anywhere else at that time, not at home, not at work, I was the caretaker in both of those places in a time when I so desperately needed care myself, and didn't realize it.  My heart was utterly broken.  During this time, I was trying to get back to full-time work, I was a full-time nursing student, mother of 5 plus 2 stepsons, and managing 3 different therapy modalities:  occupational therapy, PTSD therapy, and physical therapy.  I know you'll be shocked to learn that I would progress, then plateau.  Progress, then re-injure myself.  And, this was my pattern for 6 years. The doctors kept urging me to apply for social security, disability.  Urging me to find a different line of work, because nursing would not be kind to my system after the injuries I had sustained.  My heart was broken.  Each time I would re-injure my unstable spine, a felt like a piece of me would die.  Depression would creep in, deeper all the time.  I felt I was a failure.  I knew nothing else but nursing, it was all I'd ever done for work, what else could I do?  I kept trying.  My doctors and therapists kept after me and cared the best that they could within their scope of practice, but the truth was, I felt so beyond broken.  I quit going to my doctors.  I quit seeing a therapist about PTSD.  I stayed home.  I got up every morning, got my kids ready for school, hugged them up as they caught the bus...and I went back to bed and slept until noon.  It didn't take too long to realize that this was not a healthy way to live, that I deserved better, and that I was not going to improve my health by ignoring it.  I began reading about Paleolithic eating, tailoring meals to fit our bodies' needs, about nutrition and herbs and the biology behind our bodies and how we can heal by nourishing them properly, that our bodies are not meant to be sick, but that if we tune in to how they change and how we need to eat at each stage, age, and injury or illness, we can restore our bodies to health. 
I began this new leg of my journey in January of this year, after nearly 2 years of research and trial and error and tears and failure and pain.  And I'm glad to report, I am on my way to wellness, for the first time in nearly 8 years.  And I'm going to tell you all about it!!!!!!!



We Create Our Heaven

Many times throughout my life, I have had "out-of-body experiences."  I didn't know that's what they were when I had them; not the first few times, anyway.  We didn't talk about such things at church.  I was raised in a devout Catholic home.  We ate fish each Friday, we observed all of the traditional Catholic holidays and sacraments.  We said grace before meals, we prayed before bedtime.  I went to catechism from the time I was six, church every Sunday.  I've heard others describe their out-of-body experiences as being very much in alignment with their religious beliefs.  But each experience I've had with the Afterlife has been very different, and I feel that they directly correlate with the state of mind and/or belief system I subscribed to at the time.

The first out-of-body experience that I can remember was when I was 8 years old.  My mother was curling my hair before we went to church, and I was standing in front of her, watching her through the bathroom mirror.  Suddenly I got the most horrible, sick pain in my chest and stomach.  I groaned, clutched my stomach and crumpled to the floor.  My mother crouched over me, "Lisa!  Lisa!  Are you alright??  Dave, she's not breathing!"  My dad came, and stood watching me from the bathroom doorway.  It probably only lasted about 30 seconds.  During that time, I watched my parents, I observed my body lying flat on the bathroom floor.  I was on the ceiling of the room, looking down on my body, my mother kneeling next to me, and my dad standing in the doorway looking down at me.  I don't really remember waking up, except that I was so disoriented and confused, and why the heck was I floating on the ceiling?!?  I think it scared the shit out of my mother when I told her that.  We went to church anyway, and it was boring, as usual.  ;)

The second out-of-body experience I had was when I was about 11.  A friend and I were playing in the hallway of her apartment building.  We were playing "the choking game."  Those of you who don't know what it is, GOOD.  Don't find out.  It's dangerous, it's stupid, people have died playing this game.  Those of you who DO know what it is, BAD.  Don't play it ever again.  It's dangerous, it's stupid, people have died playing this game.  Got it?  Ok.  On with the story.  When my friend pushed on my chest and I passed out, instead of just sinking to the floor and lying unconscious for a few seconds, this time was different. I apparently stood up, ran down the entire hallway, and threw myself backwards against her neighbor's apartment door.  I woke up when my head hit the door, holy SHIT did that hurt.  She was so freaked out.  "Lisa!  What the heck are you doing??  Get back here!"  I clutched my head, got up, and ran into her apartment before the neighbor could come running out and see us.
   I remember sitting in the uppermost corner of the ceiling, looking down on my body, watching my own back as I ran down the hall.  Suddenly I got scared, and I "jumped" back into my body, the force of which threw me into the door.  I had the same sick stomachache when I woke up that I had the first time this happened.  My heart was pounding, I felt so awful, I called my mother and went home early.  I told my mom what had happened, but not about the dumb game.  She looked worried and called the doctor again in the morning.  Here we go again, more pills and doctors.  I already felt like they didn't listen.  Mom was just doing what she felt to be right, and that was to have an expert diagnose her daughter and move forward from there.  We didn't "know better" yet. 

The third out-of-body experience I had was when I was 21.  I was a divorced mother of 2, I had left the Catholic church I'd grown up in.   My priest told me I could not receive communion or have my children baptized in the Catholic Church until I paid a tidy sum of $300 to the local Diocese so that my marriage, which was legally over, would no longer be recognized by the Catholic Church.  My priest, the man who had earned my respect when he was so kind to my family after my cousin took his life.  The man who had baptized me, my brother and sister, had married my parents in his church, and had been a spiritual leader of my family since before I was born.  The man who said to me when I shamed my family by becoming pregnant at 16 years old, "This baby is not the sin, this baby is a life given by God, because of your sin.  And your sin will be forgiven." I needed to hear that just then.  I needed to lean on my church as I became a young mother and felt I had to have forgiveness for shaming my family and for being a sinner.  I thought I found it then.  I did not find it when, four years later, after months of counseling with my priest, I decided to divorce an unhealthy man.   I told my priest, "I don't believe God needs $300 from a mother of 2 who works 60+ hours each week so we can eat.  I don't believe God would take from my children so he can shut his eyes to a marriage.  And I don't believe that MY God would want me to stay with a man who was not good to me and my family.  MY God doesn't need my money.  He knows that I do."  I walked out, and never went back.  The Catholic guilt walked out with  me, though, and has taken more than 15 years since then to wash off, and maybe it never will completely.  I believe it's because of this guilt that my next out-of-body experience was like this: 
I woke up with my heart racing, positive that I had overslept and was late for work.  I jumped out of bed, ran downstairs, and by the time I hit the bottom stair I thought, "ugh I got up too fast, damn low blood pressure!"  I barely made it to the bathroom with my vision going black.  As I'm about to pass out, I think, "Good thing I made it to the bathroom, I'll sit down and..."  Next thing I knew, my bathroom was no longer my bathroom, but a dark cavern that I saw across a deep, bottomless abyss.  From where I stood, I could see on the far side of the abyss was a demon-like creature, a snarling, terrifying, horrible-looking thing, and it wanted to get me.  It was trying to get me to cross the abyss, to grab me and tear me apart, I thought to myself.  I heard a deep roaring sound filling my ears, like a train going by, and I covered my ears, screamed NO! and threw my arm out to scare off the beast.  I "came to" standing in my bathroom, swinging my right arm out into thin air and covering my ear with my left hand.  The bathtub had reappeared where I knew it always was.  I stared hard at myself in the mirror, "am I really awake??"  My pupils had completely swallowed up my irises into blackness.  I stared into my own eyes as they shrunk back to their normal size, my heart pounding so hard in my chest I thought it would jump out.  As I caught my breath, I realized I had blood all over my face, down my neck and all over my bathroom sink and floor.  My nose was bleeding profusely, and it looked broken.  I think I must have hit my nose on the sink as I passed out and fell, but how the hell did I wake up standing and swinging my arm in the air?  I don't know.  And I wasn't even late for work, it was my day off. (fuck.)

In between here, I need to mention a dream that I had before my next OBE.  When I was in high school, I was part of the Marching Band, a Color Guard and Winter Guard performer.  Our band director was an angel walking on earth.  He inspired all of us.  He was passionate about teaching, about music, about finding what you love in life and pursuing it.  He was a role model to me, and taught me to work hard for what I wanted, to believe in myself when no one else seemed to.  One morning, October 16th I believe, 2005, I woke up from a dream about him.  In the dream, I was standing next to a highway, and everything around me was shades of gray.  Faces of high school-age kids and a few adults swam in and out of focus in front of me, talking so fast and so urgently I had a hard time figuring out what they were saying.  I was suddenly on a bus, next to my band director, who was working quickly to help people around him while talking to me earnestly about something very important.  "What's wrong with me?  I wondered.  Why can't I understand him??  He's speaking English for chrissake.  But I just couldn't understand.  He finally just looked at me and sighed.  He said, "You just need to know that it's not too late for you.  Not like it is for us."  And he pointed to an empty bus seat at the front of the bus, and somehow I knew his wife was there, although I couldn't see her.  I woke up from this dream, puzzled as to why I would dream about my band director, when I hadn't seen him or talked to him in at least 5 years?  I got up, got coffee and started making the kids breakfast.  I was half-listening to the news when I heard them announce a bus crash.  My beloved band director and his band had crashed into a jackknifed semi on the highway.  The phone is ringing.  It's my mother.  "Did you hear about the bus crash?" she said.  "Mom, I know.  I dreamt about the crash this morning."  I told my mother about the dream, and was still so puzzled as to what he meant when he said "it's not too late for you..."

The next out-of-body experience I had was also in a bathroom (ok, good question for the Powers That Be, why the heck are most of my OBE's in the damn can?  Awkward.  This time, I was about 28 years old.  This was about 2 1/2 weeks after the dream I described above.
Background before this next OBE:  I had been married to my second husband for about 5 years, and we had 3 children together, my two boys from previous, and his two boys from previous, so seven beautiful kids altogether.  I was working full-time, I was a full-time nursing student, I was nursing a baby, and doing my best to bring up a houseful of amazing kids.  I thought I was doing everything right.  We went to a non-denominational church on Sundays (well...the kids and I did.) and we were pursuing "The Dream."  Big family, good jobs, I was finally pursuing my dream of becoming a nurse.  I was a God-fearing, good-hearted Christian woman.  We were renting my grandparents' house from Gramma, who had moved to Arkansas after Grampa passed.  The house felt full of sadness and negative energy to me, but I never spoke of it.  It's just the brick, it doesn't let the air circulate.  It's the tall trees surrounding us that make it seem gloomy in here.  I told myself all kinds of things to pass off the vibes I got from that house, but I had sensed them since I was a little girl.  I prayed throughout the house, many many times, asking the Divine Spirit of Christ to clear this house of its sadness, to surround it with Divine Protection and the Holy Spirit.  One time after the kids had told me for the umpteenth time how afraid they were here, or they'd seen something frightening, I had had enough.  I prayed fervently through the house, angry, demanding that any negative presence or energy there leave immediately, and I flung open the front door.  A freezing cold wind blew past me down the stairs and out the door.  I shivered.  My 4-year-old daughter said, "oooh, Mommy, your eyes glowed red just now."  I slammed the door shut and never spoke of that again.

I had this sense of doom hanging over me, it got stronger and stronger as the months went on, and by October I felt it was suffocating.  One night in late October, I got up to use the bathroom...again,  my low blood pressure caused me to feel like I was going to pass out.  Just make it to the bathroom, you'll be fine, I impatiently told myself, and that's the last thing I remember saying with my eyes open.  Suddenly a horrible, singsong, whining voice was telling me things, terrible things, and I did not want to believe them.  No.  I shook my head hard.  NO.  NO!!!  I woke myself up with my shouting, standing with fists clenched and wild eyes staring into my reflection in the full length mirror.  I didn't remember the horrible things the voice had told me, just that they were awful, but I did remember saying "it's not true, it's NOT true!"  and the singsong voice saying, "It is.  It iii-iiiiissss."  and it made me so angry I shouted NO as loud as I could.  I was so shook up from this one, I sobbed for a few hours.  I couldn't sleep.  I just had the most horrible, gut-wrenching feeling, something terrible was going to happen.  Three days later, I had a car accident on my way to work.  (remember my dream from earlier?)  I died and came back.  I was in a coma for 5 days, in the hospital for a month.  My family struggled to stay above water.  I had to put off school and work for 4 months.  I was in a wheelchair.  Everything I had worked for, suffered for,  for so long, was now crumbling all around me.  Why??  I was doing everything right, wasn't I?

When I was in the car crash, I lost some of my memory because of a head injury.  I don't remember supper the night before, or going to bed that night.  I don't remember getting up for work that morning, or driving.  I have a flash of my van spinning, slow motion, into the side of a big silver pickup after he clipped the front end of my van.  I see his wide blue eyes staring, horrified, into my own eyes.  I hear the crashing of metal and glass, but I have no picture of it.
Before I came to, I have some sort of odd memory of me walking into work, but everything was gray and I heard a strange hissing noise, like being underwater when a motorboat goes by a mile away.  I couldn't get the light switches to turn on, or the water system to turn on (I worked in dialysis and we used a reverse-osmotic water system for the patients' dialysis treatments, it was my job to start the water system each morning)  I realized that I was not inside my body.  That I was not at work at all.  That my body was still in the crumpled up van, next to the highway, right where I had left it.  My next memory is of sometime in the next 10 minutes after the crash, I'm not sure how fast people came to help but I remember coming to, alone, with the cold November wind blowing through the broken windows of my van.  I was in and out of consciousness.  Apparently I talked to a woman who held my hand until the paramedics came.  She is an angel and somehow, someday, I will repay her.  I told the paramedics exactly what was wrong with me and what had happened.  I remember screaming when they used the Jaws of Life to pry open the van and the window glass shattered all around me.  I passed out with pain as they carefully lowered me onto the stretcher, as they hit a tiny bump and I felt my life drain away.  And then I left my body, I rose above the cold highway, and I flew over the tops of pine trees so fast, they all became a green blur.  Suddenly, I was in a "place" that didn't really feel like a place...it wasn't a room with walls and windows, it wasn't outside, it wasn't sky and clouds and harps...it just...was.  It was peaceful and pure, warm and loving, and I was greeted by three beautiful, familiar women, all around 20-30 years old.  Two of them wore green gowns, with darker green sashes tied around their waists.  Their gowns were the palest shade of green,  with iridescent colors I had never seen, glinting in the fabric as it moved.  One of these women had black hair, and one had reddish-brown.  I knew the black-haired woman was my paternal grandmother, and I didn't recognize the other woman right away.  The third woman was wearing a pale pink gown with a pink sash, and her gown glistened like the others.  She had red hair, and she was my maternal great grandmother.  They were all so happy to see me,I had the strangest feeling I was coming home.  For some reason, only my paternal grandmother spoke.  She told me how very happy she was to see me,  and she wished that I could stay, but I needed to go with them and make a choice.  The other two women just beamed from ear to ear and hugged me.  I trusted them completely, I just 'knew' that I could.
They took me to my body at the hospital, where I was being prepped for emergency surgery.  My spleen was ruptured and I had nearly bled out.  Most of the bones in the left side of my body were broken, and some on the right side, too.  Internal bleeding.  Traumatic brain injury.  Punctured and collapsed lung.  I was on a ventilator.  OH MY GOD this is the most horrific pain I've ever experienced in my life, let me come back with you!  I begged the beautiful women, and they did, on and off, for the next few days.  They were with me when I was IN my body too, though, I knew they were there.  During the time I was not within my body, I was held by what I can only describe as God.  I did not see a face, I did not sense male or female, but ALL things. Not man, woman, animal, plant, but every thought, every emotion, every conscious thread was holding me in a cradle where I knew nothing but peace and love.  I saw the brown sleeve of a monk's robe and then a tree so huge, I couldn't see the top of it from where I sat at the base.  I did not sit on the ground; a vast, huge being held me like I was no bigger than a newborn baby.  Waves of peaceful, loving and joyful thoughts washed over me like gentle ocean waves.  I felt so safe,  so loved, so connected, so free of all pain and suffering, and I knew everything was ok.  I had this 'knowing,' this understanding of all things having their place, even the painful things.  They all serve a greater purpose.  I didn't think of my broken body and the pain it was enduring; I was at perfect, blissful peace.  And then the love of my children would flood my mind.  I would not leave them.  God told me, without words, but told me nonetheless, I had to make a choice.  I could stay here, free of pain, or I could go back to my body, heal, live my life, raise my children.  I knew how very hard that would be, that the pain I would endure and the injuries to my body would be unbearable.  But I would not leave my babies.  Not for more than a split-second did I consider staying.  I came back from unconditional love, so I could teach my children unconditional love, so they could learn it and know it here, before they pass, and hopefully live a more fulfilled and truthful life than those who do not experience such love until they die.  It all. Starts. With us.  :)

So when I woke up from my coma, I turned my head and whispered to my mother, who had not left my side, "remember my dream about G?  This is what he meant.  It's not too late for me."   I believe he was trying to warn me, to encourage me, to let me know it was going to be ok and don't give up.  I think the reason I couldn't understand him is because he was trying to tell me information that I was not meant to know, because it hadn't happened yet.  It was part of a bigger picture and it could not be altered.  But it all made sense when I came to in that hospital bed.  Thank you, G.  :)

When these OBE's were happening, they were spaced so far apart, I never really thought anything about them.  I never put them together on a timeline until now.   I don't know why, but I feel that they are all very important.  I'm not sure what caused them, I'm not sure if I'll have another one in my lifetime.  But I find it quite interesting that my experiences, the things that I saw during each OBE, they were very different from one another.  And each one of them reflected scenes, people or objects that were associated with my religious beliefs at that time.  This, to me, says that our thoughts are POWERFUL.  We can change our Heaven.  The beliefs that we hold and the things we associate with Heaven, WE cause them to appear as part of our afterlife experience.  There is not one static set of rules to follow in order to get to Heaven, there isn't a specific religion we have to be or we don't get a free pass, the bottom  line is US.  WE create it.  We decide with the good deeds and misdeeds we do here and the beliefs we attach to those deeds.  WE harbor the belief.  That belief is so strong, it carries beyond our physical consciousness to our higher consciousness, for a little while.  In my experience, I realized within a matter of seconds (which is relative, because time does not pass in the afterlife like it does here) that I was no longer in my body and could not interact with the physical world the way that I could before I had passed.  I quickly shed my belief that I was still continuing to work, that nothing had gone wrong that November morning.  A few attempts to switch on the lights and the water system, and I realized I was not in a physical body to do physical work for me. Yet I was still thinking, emotions and awareness still intact, and I had experiences that were like nothing I'd ever seen with my physical eyes.  The longer I was in this non-physical state, the more I became free of the boundaries and ties and belief systems we set in place here physically.  The more I was able to connect fully and freely to the constant stream of pure bliss and love, the more I realized that this is everyone's Heaven, something I believe every single being on Earth (and beyond) is capable of.